Maggie had come back to see me after seeing the cancer specialist again.
‘He was very nice, but he soon discharged me when I decided that I wasn’t going to have any chemotherapy.’
‘How are you coping?’
‘Everyone keeps telling me how brave I am. They tell me I’m a fighter and that I’m strong. I’m fucking dying and they just talk to me about staying positive. The problem is, Dr Daniels, I’m not that brave or strong or positive. Right now I’m scared. In fact, I’m thoroughly terrified. It’s as if I’m not allowed to admit it to anyone because I have to be so godforsaking brave the whole bloody time.’
‘It’s okay. You’re allowed to be scared.’
‘How about fucking terrified?’
‘Yup, that too.’
‘I’m all right when people are around or when I’m busy, but when everyone else is out and I’m alone in the house, I can’t stop myself from wondering about the end. How will it be? Will I be in pain? Will it be next week or still months away? Will I stop breathing first or will it be my heart that stops? Will I already be in a coma or will I feel myself dying? I need to have some power over this. Sometimes I wish I could piss off to Switzerland and end it all now. I just want to wrestle back control over this whole sodding thing.’
Regardless of the person with the cancer, the same clichés seem to recur time and time again. One of which is sufferers of the disease being universally thought of as ‘brave’. The public image is of ‘brave’ cancer sufferers heroically running marathons while defiantly sporting their chemotherapy-induced baldness. It’s as if the brave label arrives the moment you are diagnosed with cancer and you’re not allowed to be anything else. Reality TV personality Jade Goody morphed from being a national hate figure to being some sort of serene martyr the moment she was given her cancer diagnosis. In fact, such was the furore when she died that some people were calling for cervical cancer to be renamed ‘Jade Goody disease’. I thought I was going to have to start telling people that their smear revealed some abnormal Jade Goody cells on their cervix or that the Goody had spread to their liver. Jesus, as if breaking bad news isn’t hard enough already!
It wasn’t that Maggie was any less brave than anyone else. She was having a thoroughly normal reaction to the knowledge that she was going to die. We hadn’t really known each other well before her diagnosis, but she seemed to have acquired an immense trust in me since I spotted that she had cancer. To be fair, it wasn’t some sort of clever diagnosis worthy of House, but she clearly appreciated me sending her straight into hospital that first afternoon. There was no cure, but we were going to do everything we could to ‘keep her comfortable’. There’s another classic cancer cliché that Maggie hates.
Once a year our surgery sends out hundreds of anonymous patient satisfaction questionnaires. It always makes me feel a little under scrutiny, but overall I can’t dismiss the potential value of finding out what my patients really think about me. Some of the questions are about general matters, such as telephone access and how long it takes to get an appointment. Others are more directly targeted towards the patient’s interactions with the doctor, and contributors are specifically invited to comment on the experience of their most recent consultation.
When the collated results are emailed to me, I eagerly read them through. Being a good doctor isn’t just about being popular, but I can’t pretend that I wouldn’t feel thoroughly demoralised if all my patients reported in their questionnaires that they hated me!
This year, the first question asked whether the doctor helped them feel at ease. Phew, 85 per cent of my patients felt I had done this. The second question was whether the patient felt that their concerns had been listened to: 83 per cent scored me highly on this one. A further 88 per cent of the respondents were impressed with my ability to communicate with them. It was a relief that I was scoring well, but I was only reaching the average scores that most GPs achieve on these standardised surveys. Despite the regular pounding we get in the media, overall satisfaction in GP services remains consistently high.
The final question asked if the patients felt that their last consultation had helped lead to an improvement in their physical or mental health. On this I scored 40 per cent. Ouch! That meant for the majority of my patients, although they were put at ease, had their concerns listened to and were well communicated with, their actual health was no better off after seeing me than it was before.
This might seem like an epic failure, but actually it is a very accurate description of what a doctor does. The famous French writer Voltaire said that ‘the art of medicine consists in amusing the patient while nature cures the disease’. I would add that nature sometimes makes them worse too, but ultimately our role is often to offer a distraction while time and the miraculous natural healing abilities of the human body work their magic. Some of my patients are very aware of the limits of my therapeutic abilities, but others seem to feel that I should be performing miracles. Regardless of their expectations of my curative powers, every patient expects me to be nice to them.
It sounds obvious really, and of course it is, but a huge proportion of complaints against doctors aren’t about medical errors leading to ill health, but rather about doctors communicating poorly or not listening. One of my colleagues in A&E tells me that he always makes an effort to be ridiculously attentive to his patients however exhausted or frustrated he feels. Regardless of how rude, demanding and ungrateful the patient, he makes a huge show of bending over backwards to be gregariously charming. ‘Speaking to patients is like acting,’ he told me. ‘The only difference between me and a film star is that I’m too short, fat and bald for Hollywood.’ I try to follow his advice, but often my acting lets me down. It can be hard to be incessantly charming for an entire 12-hour night shift, but when I do manage it, my patients love me, regardless of how little I actually improve their health. This is why medicine is so often described by those in the profession as an art rather than as a science.
Having established the overwhelming importance of good communication skills when interacting with patients, it can be astonishing to witness some health-care professionals doing it so badly. Most catastrophic is when they have absolutely no idea how bad they are. Perhaps the oddest example I ever came across was as a student sitting in with a vascular surgeon. A nervous-looking gent in his 60s shuffled in with some smoking-related damage to the arteries in his legs. The very pompous surgeon asked him if he was still smoking. Defensively, the gent reassured the doctor that he had cut down from 20 cigarettes per day to just five. ‘Hmm,’ said the surgeon. ‘That’s hardly the greatest of achievements now is it? If I was a rapist who used to rape 20 women a day, but I had just recently cut down to raping just five women a day, I’d still be a horrible little rapist now wouldn’t I?’ The poor patient simply nodded aghast and I meanwhile had to pick my chin up off the floor. Perhaps it helped the patient in question give up those last five cigarettes, but even so, I’m not sure it could ever be recommended as a suitable technique for offering health promotion.
My personal worst moment of communication was about eight hours into a busy A&E shift some years ago. Corresponding to each patient sitting in the waiting room was a small set of paper notes headed with their name and the medical complaint that had brought them into the emergency department. Hour after hour, the routine was the same: I would pick up the top set of notes from the endless pile, walk into the noisy waiting room and shout out their name. For some reason, on this one occasion, instead of calling out the name, I shouted out the patient’s medical complaint instead.
‘SWOLLEN FACE,’ I bellowed at the top of my voice.
I was absolutely mortified as this was a terrible, if accidental, breach of patient confidentiality. Oddly enough, though, the patients didn’t seem to bat an eyelid and up stood a gentleman at the back of the waiting room with an impressively swollen