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The Science of Health Disparities Research


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minority groups experience higher rates of morbidity and mortality compared to Whites. Likewise, the association between lower socioeconomic status (SES) and lower educational levels with poor health outcomes is one of the most established relationships in the literature. This chapter will explore the concepts and measurement of race and ethnicity and aspects of SES, provide some epidemiological data for racial/ethnic groups in the United States, as well as discuss studies that have used innovative methods to explain the intersection of race and ethnicity, SES, and social context.

      3.3.1 Conceptual Model

      Source: LaVeist et al. [3]. © 2005, John Wiley & Sons.

      The right side of the model outlines the behavioral pathway, showing that there may be characteristics of the nationality or culture of an ethnic group that influence health or illness behaviors and, thus, health status downstream. These factors may account for some degree of health disparities.

      The third pathway through which racial/ethnic differences in health status are produced is demonstrated by the arrow linking societal factors to health/illness behavior. Specifically, societal factors limit the ability of an individual to address health issues or adopt behaviors that protect one's health. For example, a person's race may lead to lower SES, which may lead to the under‐utilization of health services. This model explains that illness behavior is not directly associated with race or ethnicity; rather, it is associated with social class, which is an important distinction. However, considering the way that race and ethnicity are commonly explored, it is possible to inaccurately attribute illness behaviors to one's race and ethnicity rather than understanding the effects of social class on behavior. These errors lead to the assumption that there is something about a person's skin color, rather than their societal context, that makes them engage in risky behavior [3].

      3.3.2 US Census Definitions

      Race, ethnicity, and nationality are often used interchangeably. Ethnicity refers to cultural commonality, whereas race refers to one's physical characteristics, predominantly skin color. Nationality refers to one's country of origin. It is important to note that there has been a lack of clarity when it comes to defining race and ethnicity. In examining representative medical and allied health dictionaries for definitions of race, one finds significant variability. This lack of clarity has had important implications for the collection of data by race and ethnicity. It was not until 1977, when the US Office of Management and Budget (OMB) issued OMB Directive No. 15, that standards were established for the collection of data on race and ethnicity, which allowed for consistency and comparable data for a variety of government programs. Since then, federal data have been routinely reported for Latinos and Asian Americans. Detailed census definitions are provided in chapter 1 [3].

      3.3.3 Race Versus Ethnicity

      Compared to race, which often refers to one's physical characteristics, ethnicity refers to an individual's belonging to a social group that shares a common national or cultural background. The largest minority group in the United States, Latinos, is an ethnic group that combines persons from multiple countries and ethnic identities. Latinos sometimes share a similar history, culture, and religion, but not always. They mainly speak Spanish, but often different dialects. It is also important to note that throughout much of Latin America there are indigenous groups that do not speak Spanish as their primary language.

      Consider the experiences of US immigrants from East Asia, Southeast Asia, and the Pacific Islands, who originate from dozens of ethnic groups, some with mixed indigenous or European descent. Upon arrival in the United States, they are viewed as the single racial group of Asian or Pacific Islander. A similar example can be made of immigrants during the nineteenth and twentieth centuries from the European nations of Ireland, Italy, and the former Soviet Union and Russia. Despite coming from distinct cultural backgrounds, they were categorized as White in the United States. Rarely is this source of variation taken into account in health research. The same can be said for indigenous populations in South America and Africa. The Yoruba of Brazil and Nigeria share a common cultural background, yet they differ in nationality. Within the American cultural context, they both would be viewed as the single racial group of Black or African American, thus adopting the health risk profile associated with that group.

      We often try to capture the concepts of ethnicity and race in one summary term, though doing so can result in some degree of measurement error. More importantly, the lack of conceptual clarity leaves a great deal of room for erroneous interpretations of research findings and, consequently, for ineffective public policy, public health programming, and even medical practice. OMB Directive No. 15 instructs that, where possible, race and ethnicity be captured by separate questions: the first for the individual's race (American Indian or Alaskan Native,