my hands. In looking at what I have written, I expect you will have difficulty to understand, but with a little luck, I may keep up with you.
We have had a change in the weather from cold and wet to dry with fair blue skies. I hope it stays this way. Keep up the good work.
Love, Grandpa
P.S. Thank you for the gifts.
MY FATHER’S HEART and lungs were very strong, and my mother was bracing herself for two or three more years of endgame when, one day in April 1995, he stopped eating. Maybe he was having trouble swallowing, or maybe, with his remaining shreds of will, he’d resolved to put an end to his unwanted second childhood.
His blood pressure was seventy over palpable when I flew into town. Again, my mother took me straight to the nursing home from the airport. I found him curled up on his side under a thin sheet, breathing shallowly, his eyes shut loosely. His muscle had wasted away, but his face was smooth and calm and almost entirely free of wrinkles, and his hands, which had changed not at all, seemed curiously large in comparison to the rest of him. There’s no way to know if he recognized my voice, but within minutes of my arrival his blood pressure climbed to 120/90. I worried then, worry even now, that I made things harder for him by arriving: that he’d reached the point of being ready to die but was ashamed to perform such a private or disappointing act in front of one of his sons.
My mother and I settled into a rhythm of watching and waiting, one of us sleeping while the other sat in vigil. Hour after hour, my father lay unmoving and worked his way toward death; but when he yawned, the yawn was his. And his body, wasted though it was, was likewise still radiantly his. Even as the surviving parts of his self grew ever smaller and more fragmented, I persisted in seeing a whole. I still loved, specifically and individually, the man who was yawning in that bed. And how could I not fashion stories out of that love—stories of a man whose will remained intact enough to avert his face when I tried to clear his mouth out with a moist foam swab? I’ll go to my own grave insisting that my father was determined to die and to die, as best he could, on his own terms.
We, for our part, were determined that he not be alone when he died. Maybe this was exactly wrong, maybe all he was waiting for was to be left alone. Nevertheless, on my sixth night in town, I stayed up and read a light novel cover to cover while he lay and breathed and loosed his great yawns. A nurse came by, listened to his lungs, and told me he must never have been a smoker. She suggested that I go home to sleep, and she offered to send in a particular nurse from the floor below to visit him. Evidently, the nursing home had a resident angel of death with a special gift for persuading the nearly dead, after their relatives had left for the night, that it was OK for them to die. I declined the nurse’s offer and performed this service myself. I leaned over my father, who smelled faintly of acetic acid but was otherwise clean and warm. Identifying myself, I told him that whatever he needed to do now was fine by me, he should let go and do what he needed to do.
Late that afternoon, a big early-summer St. Louis wind kicked up. I was scrambling eggs when my mother called from the nursing home and told me to hurry over. I don’t know why I thought I had plenty of time, but I ate the eggs with some toast before I left, and in the nursing-home parking lot I sat in the car and turned up the radio, which was playing the Blues Traveler song that was all the rage that season. No song has ever made me happier. The great white oaks all around the nursing home were swaying and turning pale in the big wind. I felt as though I might fly away with happiness.
And still he didn’t die. The storm hit the nursing home in the middle of the evening, knocking out all but the emergency lighting, and my mother and I sat in the dark. I don’t like to remember how impatient I was for my father’s breathing to stop, how ready to be free of him I was. I don’t like to imagine what he was feeling as he lay there, what dim or vivid sensory or emotional forms his struggle took inside his head. But I also don’t like to believe that there was nothing.
Toward ten o’clock, my mother and I were conferring with a nurse in the doorway of his room, not long after the lights came back on, when I noticed that he was drawing his hands up toward his throat. I said, “I think something is happening.” It was agonal breathing: his chin rising to draw air into his lungs after his heart had stopped beating. He seemed to be nodding very slowly and deeply in the affirmative. And then nothing.
After we’d kissed him goodbye and signed the forms that authorized the brain autopsy, after we’d driven through flooding streets, my mother sat down in our kitchen and uncharacteristically accepted my offer of undiluted Jack Daniel’s. “I see now,” she said, “that when you’re dead you’re really dead.” This was true enough. But, in the slow-motion way of Alzheimer’s, my father wasn’t much deader now than he’d been two hours or two weeks or two months ago. We’d simply lost the last of the parts out of which we could fashion a living whole. There would be no new memories of him. The only stories we could tell now were the ones we already had.
[2001]
PRIVACY, privacy, the new American obsession: espoused as the most fundamental of rights, marketed as the most desirable of commodities, and pronounced dead twice a week.
Even before Linda Tripp pressed the “Record” button on her answering machine, commentators were warning us that “privacy is under siege,” that “privacy is in a dreadful state,” that “privacy as we now know it may not exist in the year 2000.” They say that both Big Brother and his little brother, John Q. Public, are shadowing me through networks of computers. They tell me that security cameras no bigger than spiders are watching from every shaded corner, that dour feminists are monitoring bedroom behavior and watercooler conversations, that genetic sleuths can decoct my entire being from a droplet of saliva, that voyeurs can retrofit ordinary camcorders with a filter that lets them see through people’s clothing. Then comes the flood of dirty suds from the Office of the Independent Counsel, oozing forth through official and commercial channels to saturate the national consciousness. The Monica Lewinsky scandal marks, in the words of the philosopher Thomas Nagel, “the culmination of a disastrous erosion” of privacy; it represents, in the words of the author Wendy Kaminer, “the utter disregard for privacy and individual autonomy that exists in totalitarian regimes.” In the person of Kenneth Starr, the “public sphere” has finally overwhelmed—shredded, gored, trampled, invaded, run roughshod over—“the private.”
The panic about privacy has all the finger-pointing and paranoia of a good old American scare, but it’s missing one vital ingredient: a genuinely alarmed public. Americans care about privacy mainly in the abstract. Sometimes a well-informed community unites to defend itself, as when Net users bombarded the White House with e-mails against the “clipper chip,” and sometimes an especially outrageous piece of news provokes a national outcry, as when the Lotus Development Corporation tried to market a CD-ROM containing financial profiles of nearly half the people in the country. By and large, though, even in the face of wholesale infringements like the war on drugs, Americans remain curiously passive. I’m no exception. I read the editorials and try to get excited, but I can’t. More often than not, I find myself feeling the opposite of what the privacy mavens want me to. It’s happened twice in the last month alone.
On the Saturday morning when the Times came carrying the complete text of the Starr report, what I felt as I sat alone in my apartment and tried to eat my breakfast was that my own privacy—not Clinton’s, not Lewinsky’s—was being violated. I love the distant pageant of public life. I love both the pageantry and the distance. Now a President was facing impeachment, and as a good citizen I had a duty to stay informed about the evidence, but the evidence here consisted of two people’s groping, sucking, and mutual self-deception. What I felt, when this evidence landed beside my toast and coffee, wasn’t a pretend revulsion to camouflage a secret interest in the dirt; I wasn’t offended by the sex qua sex; I wasn’t worrying about a potential future erosion of my own rights; I didn’t feel the President’s pain in the empathic way he’d