decision‐making following a prenatal diagnosis that is lethal, life‐limiting, or has long term implications for the future child and family: a meta‐synthesis of qualitative literature. BMC Med Ethics 2019; 20:56.
980 980. Supiano K, Vaughn‐Cole B. The impact of personal loss on the experience of health professions: graduate students in end‐of life and bereavement care. Death Stud 2011; 35:73.
981 981. Silver J, Caleshu C, Casson‐Parkin S, et al. Mindfulness among genetic counselors is associated with increased empathy and work engagement and decreased burnout and compassion fatigue. J Genet Couns 2018; 27:1175.
982 982. Verp M, Bombard A, Simpson J, et al. Parental decision following prenatal diagnosis of fetal chromosome abnormality. Am J Med Genet 1988; 29:613.
983 983. Meryash D, Abuelo D. Counselling needs and attitudes toward prenatal diagnosis and abortion in fragile X families. Clin Genet 1988; 33:349.
984 984. Sandelowski M, Barroso J. The travesty of choosing after positive prenatal diagnosis. J Obstet Gynecol Neonatal Nurs 2005; 34(3):307.
985 985. Lou S, Jensen LG, Peterson OB, et al. Parental response to severe or lethal prenatal diagnosis: a systematic review of qualitative studies. Prenat Diagn 2017; 37(8):731.
986 986. Chow EWC, Watson M, Young DA, et al. Neurocognitive profile in 22q11 deletion syndrome and schizophrenia. Schizophr Res 2006; 87:270.
987 987. Evers LJ, De Die‐Smulders CE, Smeets EE, et al. The velo‐cardio‐facial syndrome: the spectrum of psychiatric problems and cognitive deterioration at adult age. Genet Couns 2009; 20:307.
988 988. Baker K, Vorstman JAS. Is there a core neuropsychiatric phenotype in 22q11.2 deletion syndrome? Curr Opin Neurol 2012; 25:131.
989 989. Murphy KC. Annotation: velo‐cardio‐facial syndrome. J Child Psychol Psychiat 2005; 46:563.
990 990. Murphy KC. Schizophrenia and velo‐cardio‐facial syndrome. The Lancet 2002; 359:426.
991 991. McDonald‐McGinn DM, Hain HS, et al. 22q11.2 Deletion syndrome. In: Adam MP, Ardinger HH, Pagon RA, et al., eds. GeneReviews® [internet]. Seattle (WA): University of Washington, Seattle, 1993–2020, September 23, 1999.
992 992. White‐van Mourik MCA, Connor JM, Ferguson‐Smith MA. The psychosocial sequelae of a second‐trimester termination of pregnancy for fetal abnormality. Prenat Diagn 1992; 12:189.
993 993. Blumberg BD, Golbus MC, Hanson K. The psychological sequelae of abortion performed for a genetic indication. Am J Obstet Gynecol 1975; 122:799.
994 994. Blumberg BD. The emotional implications of prenatal diagnosis. In: Emery, AEH, Pullen IM, eds. Psychological aspects of genetic counselling. London: Academic Press, 1984:202.
995 995. October T, Dryden‐Palmer K, Copnell B, et al. Caring for parents after the death of a child. Pediatr Crit Care Med 2018; 19(8S Suppl 2):S61.
996 996. Udipi S, Veach PM, Kao J, et al. The psychic costs of empathic engagement: personal and demographic predictors of genetic counselor compassion fatigue. J Genet Couns 2008: 17;459.
997 997. Parkes CM. Bereavement. Studies of grief in adult life. London: Tavistock Publications, 1972.
998 998. Worden JW. Grief counseling and grief therapy, 2nd edn. New York: Springer, 1991.
999 999. Cacciatore J. Psychological effects of stillbirth. Semin Fetal Neonatal Med 2013; 18:76.
1000 1000. Appleton R, Gibson B, Hey E. The loss of a baby at birth: the role of the bereavement officer. Br J Obstet Gynaecol 1993; 100:51.
1001 1001. Seller M, Barnes C, Ross S, et al. Grief and midtrimester fetal loss. Prenat Diagn 1993; 13:341.
1002 1002. Fanos JH. Developmental tasks of childhood and adolescence: implications for genetic testing. Am J Med Genet 1997; 71:22.
1003 1003. Wertz DC, Fanos JH, Reilly PR. Genetic testing for children and adolescents: who decides? JAMA 1994; 272:875.
1004 1004. Clinical Genetics Society (UK). Report of a working party: the genetic testing of children. J Med Genet 1994; 31:785.
1005 1005. American Society of Human Genetics and American College of Medical Genetics. Points to consider: ethical, legal and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet 1995; 57:1233.
1006 1006. Green M, Solnit AJ. Reactions to the threatened loss of a child: a vulnerable child syndrome. Pediatrics 1964; 034:58.
1007 1007. McIntosh N, Eldrige C. Neonatal death: the neglected side of neonatal care? Arch Dis Child 1984; 59:585.
1008 1008. Bourne S. The psychological effects of a stillbirth on women and their doctors. J R Coll Gen Pract 1968; 16:103.
1009 1009. Crowther ME. Communication following a stillbirth or neonatal death: room for improvement. Br J Obstet Gynaecol 1995; 102:952.
1010 1010. American College of Obstetricians and Gynecologists, Society for Maternal‐Fetal Medicine. Management of Stillbirth: Obstetric Care Consensus No, 10. Obstet Gynecol 2020; 135:e110.
1011 1011. Causes of death among stillbirths. Stillbirth Collaborative Research Network Writing Group. JAMA 2011; 306:2459.
1012 1012. Laury A, Sanchez‐Lara PA, Pepkowitz S, et al. A study of 534 fetal pathology cases from prenatal diagnosis referrals analyzed from 1989 through 2000. Am J Med Genet A 2007; 143A:3107.
1013 1013. Korteweg FJ, Bouman K, Erwich JJ, et al. Cytogenetic analysis after evaluation of 750 fetal deaths: proposal for diagnostic workup. Obstet Gynecol 2008; 111:865.
1014 1014. Saleem S, Tikmani SS, McClure EM, et al. Trends and determinants from stillbirth in developing countries: results from the Global Network's Population‐Based Birth Registry. Reprod Health 2018; 15(Suppl 1):100.
1015 1015. Stanley KE, Giordano J, Thorsten V, et al. Casual genetic variants in stillbirth. N Engl J Med 2020; 383:1107.
1016 1016. Barrett PM, McCarthy FP, Evans M, et al. Stillbirth is associated with increased risk of long‐term maternal renal disease: a nationwide cohort study. Am J Obstet Gynecol 2020; 223:427.e1.
1017 1017. Brookes JAS, Hall‐Craggs MA, Sams VR, et al. Noninvasive perinatal necropsy by magnetic resonance imaging. Lancet 1996; 348:1139.
1018 1018. Gagnon A, Wilson RD, Allen VM. Evaluation of prenatally diagnosed structural congenital anomalies. J Obstet Gynaecol Can 2009; 31:875.
1019 1019. Desilets V, Oligny LL. Fetal and perinatal autopsy in prenatally diagnosed fetal abnormalities with normal karyotype. J Obstet Gynaecol Can 2011; 267:1047.
1020 1020. Sethi N, Funamoto K, Ingbar C, et al. Noninvasive fetal electrocardiography in the diagnosis of Long QT syndrome: a case series. Fetal Daign Ther 2020; 47(9):711.
1021 1021. Shim SH, Ito M, Maher T, et al. Gene sequencing in neonates and infants with the long QT syndrome. Genet Test 2005; 9:281.
1022 1022. Cuneo BF, Kaizer AM, Clur SA, et al. Mothers with long QT syndrome are at increased risk for fetal death: findings from a multicenter international study. Am J Obstet Gynecol 2020; 222:263.e1.
1023 1023. Lewkowitz AK, Rosenbloom JI, López JD, et al. Association between stillbirth at 23 weeks of gestation or greater and severe maternal morbidity. Obstet Gynecol 2019; 134:964.
1024 1024. Nicholas AM, Lewin TJ. Grief reactions of parental couples: congenital handicap and cot death. Med J Aust 1986; 144:292.
1025 1025. Lafarge C, Mitchell K, Fox P. Perinatal grief following a termination of pregnancy for foetal abnormality: the impact of coping strategies. Prenat Diagn 2013; 33:1173.
1026 1026. Mashiach R, Anter D, Melamed N, et al. Psychological response to multifetal reduction and pregnancy termination due to fetal abnormality. J Matern Fetal Neonatal Med 2013, 26:32.
1027 1027. Lewis E, Bryan E. Management of perinatal loss of a twin. BMJ 1988; 297:1321.
1028 1028. Lewis E. Stillbirth: psychological consequences and strategies of management. In: Milunsky A, ed. Advances