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Individual Participant Data Meta-Analysis


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outcome definitions, and to ensure that the central research team has understood the data correctly. The time and resource needed for checking will depend on how clean the data are on arrival and the extent of checking required. Allowing about three or four days per trial for carrying out data checking is a good starting point. It is useful to allow extra time beyond when the last dataset might be received, in order to complete the checking processes.

      Generally, IPD meta‐analysis projects will take upwards of two years to complete, and sometimes longer depending on how many trials are involved and the complexities of negotiating collaboration, data coding, checking, cleaning and analysis. Delays may be outside the control of the project team. Flexibility in staffing and scheduling is needed to accommodate this, which can make setting and meeting funder milestones challenging. In our experience, extensions to the original timelines agreed with funders may be required, particularly if key trials delay sending their IPD. Work may be most intense at the beginning and end of a project, and this can be borne in mind when planning resourcing and staffing. Nonetheless, it is important that projects are actively managed at all times and that the research team keep on top of projects and moving them forward.

      Prospective IPD meta‐analysis projects will additionally need to run to timelines that accommodate those of the participating trials (Section 3.12).

      IPD meta‐analysis projects cannot be done by a small volunteer review team and usually cost more than a standard systematic review. However, they are considerably less expensive than carrying out a new clinical trial, which may be the only reliable alternative to addressing the research question that the IPD meta‐analysis aims to resolve.

      Funding staff time is likely to be the largest project cost. Whilst the staff resource needed for some tasks will be similar to a conventional systematic review, such as those associated with searching and screening studies for inclusion, other costs will be highly dependent on the size and scope of the project. As described in Section 3.7, sufficient staff time needs to be allowed for checking and recoding variables within IPD and for performing the analyses.

      Staff Costs

       Principal investigator (considerable time may be needed for this strategic and diplomatic role)

       Clinical/topic expert members of team (resource depends on level of involvement)

       Experienced statistician (to plan supervise and undertake complex syntheses)

       Statistician(s) (to plan, code and carry out analyses)

       Researcher(s) (to screen, assess risk of bias, re‐code, check data)

       Information specialist (likely to be similar to a standard systematic review)

       Administrative support (e.g. to organise results meeting)

       IT support (if there are special requirements or if not provided by host institution)

       Legal input to data‐sharing agreements (if not provided by host institution)

      General Costs

       Inter‐library loans and document acquisition (similar to a standard systematic review)

       Telephone and teleconference calls with trial investigators

       Conference calls for advisory or collaborative group meetings

       Any travel likely to be needed to secure provision of data

       Any specialist software required for data management or statistical analysis

      Fees

       Data preparation bursaries or fees to trial investigators for preparing data (if these are used)

       Any fees to data‐sharing repositories for access to data

       Any special licenses required to read/handle repository data

      Advisory Group Meetings

       Travel and venue costs (can be reduced by holding most meetings virtually)

       Catering for face‐to‐face meetings

      Patient and Public Involvement Costs

       Payment for contributed time, including preparing for and attending meetings

       Travel to meetings and incidental expenses

      Collaborative Group Meeting

       Venue and equipment hire

       Catering during meeting

       Other